Home | MIDATA
Time 2022-09-30 13:59:23Web Name: Home | MIDATA
WebSite: http://www.midata.coop
ID:334979
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CloseMission
MIDATA shows how data can be used for the common good, while at the same time ensuring the citizens’ control over their personal data.
The MIDATA model is designed for international application: MIDATA Switzerland supports the foundation of regional or national MIDATA cooperatives that share the data platform infrastructure.
Owners of a data account at MIDATA may actively contribute to medical research and clinical studies by granting selective access to their personal data. They may become members of the cooperative and thereby control the cooperative.
Become a member Data account
Please note: As of February 2022, a website “midatacorp dot com” is advertising a crypto investment scheme, fraudulently using MIDATA Cooperative’s identity (name, address, registry of commerce entry). There is no connection between MIDATA Cooperative and said website nor the unknown owners of said website. MIDATA Cooperative has notified the National Cyber Security Centre NCSC and the domain registrar.
Values
Citizen owned
Personal data are stored on the MIDATA platform. Data account holders can participate in app-based research projects and benefit from app-based services. As cooperative members, they govern the cooperative at the general assembly. In this way, members will increasingly be able to take control over their data and their health.
Nonprofit
MIDATA cooperatives are nonprofit institutions. They work best without financial incentives, similar to citizen science platforms or blood donation. Net profits are reinvested into the services offered on the MIDATA platform. These are shaped for the benefit of the public, and they provide high standards of data safety and data protection.
Transparent
Transparency is ensured by the fact that the governance principles of MIDATA cooperatives are public. Members are informed and can participate in decision making processes. They can also withdraw their personal data at any time.
Secure
All datasets are encrypted; only data account holders have access to their individual data. Each access to data is logged. To enable global research and clinical studies, secure data access via individual national cooperatives will be implemented – while at the same time maintaining account holders’ control over their data.
Regional
The MIDATA model enables the construction of regional/national cooperatives which, by a set of common rules, permit global research projects to be set up and carried out in a fair and democratic manner.
Open Source
The MIDATA platform is based on open source software developed at ETH Zurich and Bern University of Applied Sciences BFH. The software is published as “Open MIDATA Server”, under GNU General Public License v3.0.
Projects
«MitrendS»
The tablet app for Multiple Sclerosis patients
More
Concept: secure electronic vaccination card
More
«MitrendS Citizen Science»
Citizen-controlled data for research on multiple sclerosis
More
«SFK MindCare»
«SFK MindCare»: Training of self-awareness and self-regulation for people with an addiction illness
More
«Corona Science»
Citizen-reported data for the Open Data community
More
«Aider les Proches Aidants»
Support for family caregivers
More
«Ally Science»
The study on pollen allergy in Switzerland
More
«MiSens»
How fine is my sense of smell and taste?
More
«MIMOTI»
Motivation for patients after obesity-related surgery
More
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