Raising DES Awareness - DES Daughter Network
Time 2021-11-25 08:42:47Web Name: Raising DES Awareness - DES Daughter Network
WebSite: http://desdaughter.com
ID:250214
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DES,Raising,Awareness,Network,Daughter,Description:
keywords: description: Skip to contentDES Daughter Network
Because Social Media increases Awareness and brings the DES Community Together
Finding effective ways to spread DES awareness, like blowing dandelion seeds
My DES Daughter Network blog is the little sister of my Diethylstibestrol, Journal of a DES Daughter website blog but with a focus on social media and social networking.
This blog provides me with an additional platform where I can express myself about DES issues and share my experience of using social media networks to support this cause with others interested in the health and personal problems associated with DES exposure.
DES Daughter NetworkAround the world, thousands, maybe millions of people are totally unaware that they were exposed to Diethylstilbestrol DES, a toxic and carcinogenic drug. All of these people are not receiving proper medical treatment, or making truly informed decisions about their healthcare, as a result.
How do you reach out to these people? One answer which immediately came to my mind when I started writing my Journal of a DES Daughter is through the use of social media and social networking.
Nowadays, social media and social networking tools are vital to building a strong online presence. The use of social media is stronger than ever. Facebook, Flickr, Twitter, YouTube are just some of the popular forms of social media used by millions around the world on a daily basis. Chances are, anyone you speak to today has at least one, if not more of these accounts.
To me, social media is simply the easiest, fastest and cheapest, yet effective way to raise DES awareness.
Connect: DES, like social media, is about people. People affected by this drug disaster often feel lonely and would benefit from connecting with other DES victims.Contribute: DES information needs to be instantly available to the public to generate an instant reaction and increase awareness.Collaborate: DES is a worldwide tragedy. DES information, studies and data need to be shared to better understand the full extent of the health issues associated with DES exposure. Social media increases potential for collaboration.Change: The DES story needs to be told not just through studies, statistics, numbers and figures but through real life experiences. The collective voice of DES victims on social media platforms can bring about change. Lessons must be learned so that history doesn’t repeat itself.The 4 Cs of Social Media for the DES cause
Connect, Contribute, Collaborate, Change
Despite the number of people affected by the DES tragedy and the hard work of DES support groups and activists, the DES cause is going unnoticed, or not noticed enough amongst the general public. The use of social media has the ability to change this. In todays fast-moving world, we will make a difference and bring about change only if we connect, contribute, and collaborate.
More DES DiEthylStilbestrol ResourcesDES studies on cancers and screening.DES studies on epigenetics and transgenerational effects.DES studies on fertility and pregnancy.DES studies on gender identity and psychological health.DES studies on in-utero exposure to DES and side-effects.DES studies on the genital tract.Papers on DES lawsuits.DES videos and posts tagged DES, the DES-exposed, DES victims.Share this:TwitterFacebookPinterestMoreEmailPrintLinkedInReddit 176 thoughts on Raising DES AwarenessI think one reason the DES cause is unnoticed in the general public is that most of us are older. The drug has not been given since 1971, making the youngest of us in their 40s. There really hasnt been anything new regarding the research in the last 15-20 years. Im glad I found this page, Ive been out of the DES loop for years but I still am having problems from this drug. Its the gift that keeps on giving.
ReplyIm not sure what DES is. I grew up in South America and perhaps we didnt get that drug? What would it have been given for?
Monica Hayden
Hi Monica, DES is the first synthetic man made female sex hormone (oestrogen) prescribed for public use mainly between 1938 and 1971 (but not limited to those years). DES exposure occurred through diverse sources, such as medical treatment for certain conditions, including breast and prostate cancers. During more than 40 years, DES was primarily given to pregnant women under the mistaken belief it would reduce the risk of pregnancy complications and losses. It was prescribed mainly in the USA, Europe and Australia. No sure about South America but I will try to find out. I hope this helps. For more information about DES please visit Diethylstilbestrol
ReplyI know its been a number of years sence your post but if you could connect with me or let me know how I can connect with you that would be great. My grandmother was a W.A.C and recieved the DES shot with her last 4 pregnancys. She passed away in the 80s of Cancer. The last 3 years we have lost 1 Aunt, an Uncle and most recently our Mother to a rare Cancer(Nuroendoctrin Small Cell Carcinoma ). As of today our Aunt (the last surviving pregnancy to have recieved the shot) has been diagnosed with Cancer as well. Not all of us kids have been tested for T-Cell markers but I have and its not good. Every one who has passed have been in their early to mid 50s. We just all need answers and at 33 I now find myself getting things ready for my children in case I pass in my 50s. Please help.
ReplyI have sent you an email
TAGS:DES Raising Awareness Network Daughter
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